Profile
Retinoblastoma (RB) is the most common eye cancer in children and
it can be inherited.
Although the most common eye cancer in children, retinoblastoma is
quite rare and occurs in approximately 1 in every 20,0000 births.
The goal with retinoblastoma is early detection to maximize the
visual outcome and the quality of life of the affected child.
Fortunately, the survival rate for affected children is
96%.
In order to achieve our goal of early detection, we believe it is
important to educate the public and other health professionals on the
signs that might manifest themselves with a child that has
retinoblastoma. We encourage people to share this information with
others as many of the signs are very subtle and may not be picked up
even by a health professional, due to the rarity of this disease.
EARLY DETECTION IS THE KEY!!!!
Contact
Information
Health Professionals should contact ...
Brenda L. Gallie, MD
Professor, University of Toronto
Head Cancer Informatics
Ontario Cancer Institute/
Princess Margaret Hospital
University Health Network
610 University Avenue
Toronto M5G 2M9
Parents wanting further information or wanting to contact other
parents who have gone through similar experiences should contact..
Donn or Tania Charles