The goal of this website is to inform parents and professionals of the resources available for Retinoblastoma with specific focus on Canadian resources.

bulletOur Mission

Our mission is to expand awareness of retinoblastoma


Retinoblastoma (RB) is the most common eye cancer in children and it can be inherited.

Although the most common eye cancer in children, retinoblastoma is quite rare and occurs in approximately 1 in every 20,0000 births.

The goal with retinoblastoma is early detection to maximize the visual outcome and the quality of life of the affected child.  Fortunately, the survival rate for affected children is 96%.

In order to achieve our goal of early detection, we believe it is important to educate the public and other health professionals on the signs that might manifest themselves with a child that has retinoblastoma.  We encourage people to share this information with others as many of the signs are very subtle and may not be picked up even by a health professional, due to the rarity of this disease.  EARLY DETECTION IS THE KEY!!!!

bulletContact Information

Health Professionals should contact ...

Brenda L. Gallie, MD 
Professor, University of Toronto
Head Cancer Informatics 
Ontario Cancer Institute/ 
Princess Margaret Hospital
University Health Network 
610 University Avenue
Toronto M5G 2M9

Parents wanting further information or  wanting to contact other parents who have gone through similar experiences should contact..

 Donn or Tania Charles


Check out the news stories page to see  articles in the newspaper about RB.
To see this site in all its glory you should be using Internet Explorer 5 or above and a screen resolution of 800X600.
Please email us if you are interested in sharing your unique story to help others cope in this struggle.
Go to the upcoming events page to see events to do with RB